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Patient Support
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A small group of people of different ages sitting in conversation in a sunlit room

Community & trust

Giving patients a voice

Not a resource list. People who went through some version of this, and the groups that walked with them.

  • Ray, 68, Living with non-small cell lung cancer

    "I put off the first call for three weeks because I assumed the answer would be no. It took eleven minutes and the answer was yes."

    Ray was uninsured between jobs when he was diagnosed. A counselor screened him for the Patient Foundation on the same call.

    Ray, 68 · Living with non-small cell lung cancer

    Hear more of Ray's story· 6:42
  • Dana, 54, Caring for her daughter

    "Nobody asked how I was doing for about four months. When someone finally did, I didn't have an answer ready."

    Dana joined a caregiver group through the advocacy directory and now helps run its weekly call.

    Dana, 54 · Caring for her daughter

    Hear more of Dana's story· 8:15
  • Mira, 33, Two years into treatment

    "The trial navigator called the study site for me. I would never have known to ask that question myself."

    Mira enrolled in a study 40 minutes from home after a navigator reviewed her eligibility.

    Mira, 33 · Two years into treatment

    Hear more of Mira's story· 7:03

Advocacy groups

Independent organizations. They don't work for us, which is part of the point.

  • National Patient Advocate Network

    Coverage denials, appeals, billing help

  • Caregiver Circle

    Weekly peer calls for family caregivers

  • Lung Health Alliance

    Disease education and local support chapters

  • Trial Access Project

    Independent clinical trial matching support

  • Rural Care Bridge

    Travel, lodging, and distance-to-care support

  • Young Patients Collective

    Community for people diagnosed under 40

Patient Co-Creation Council

Twenty-two patients and caregivers who review this experience four times a year, get paid for their time, and can veto language that doesn't sound like a human wrote it.

Applications open twice a year. No medical or professional background required — the qualification is having lived it.

See what they changed, and request a seat

Our promise

Breakthrough science only matters if it reaches people. Our population health work focuses on the gaps: communities under-represented in research, distance to specialty care, and coverage barriers that decide who gets treated and who waits.

Ask the assistant about any of this

Concept prototype. Stories, groups, and program details are illustrative placeholders — not medical, legal, or financial guidance.